OT - Duprytrens Contracture Disease - Follow Up Aug 1

[86er]

If you know what it is, what do you know about getting rid of it either through non-invasive means or surgery? Any personal experiences that can be shared are appreciated. If it makes a difference, this instance is not progressive but onset due to trauma. Internet has a bunch of scary info about it.

SEE POSTING BELOW for F/U

[foxtrapper]

Sh..t ,what happened Joe?

[Tycer]

No one I know has had it but this website looks interesting:

http://www.dupuytrens-contracture.com/

I'm not much for doctors.

[Ysabel Kid]

Joe, prayers up!

[19112TAP]

My fater-in-law has had this for a while and it really affects his ability as a farmer but he works around it.

[Lawyer Daggit]

Wife has it on her little pinky. I understand there are no non surgical fixes.

Sorry.

[2ndovc]

Runs in our family. My Grandfather and my Dad both had to deal with it.

About two years ago my Dad had a procedure done at the Cleveland Clinic.
The Doc made a series of tiny incisions and stuck in a probe. Dad said it sounded like
a piano wire being clipped. A few days of recovery and his hand is as good as new.

I'll have to deal with it someday as well, already see the tendons on my
right hand begining to "thickin" up.

At least it's fixable!!

jb

[RKrodle]

Here you go Joe. I found this searching for "the Vikings Curse" Read it and let me know what we need to do. Mine is also trauma induced.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1305903/

[86er]

For those that have this - we need to travel abroad by ship; raid a kingdom and create a colony; become farmers, merchants and tradesmen; inter-breed with the Spanish and Flatts; wait 300 years; find a French surgeon; provide ample wine; learn to put up with a bad attitude; get our hand cut in a zig-zag; wait for the cut to heal; and then learn to live with the closed hand!

Or - I found a specialist in Rockwall that will inject a syrum into the tissue around the ligament. The formula disolves the fat and scar tissue, thereby releasing the ligament to it's full extension. The results for one or two affected ligaments are about 80% and have lasted 3 years with no relapse that have been recorded thus far. It is 55% affective to date when 4 ligaments are involved. I'll be the guinea pig and go first.

[gamekeeper]

Good Luck Joe, prayers up.

[RKrodle]

Ok Joe you go first. If by chance this does something to your hand so that you can't shoot I call dibs on your 86.

[crs]

Could this have anything to do with your diving upon a wounded Oklahoma pheasant recently?

[Old Shatterhand]

My father's wife had a chirurgic treatment against this two years ago. She was OK again two months after the operation.

Suppousedly I will be affected by it myself: my mother had her first signs when she was 65 years old, her father had it and so had her grandfather too. It is not uncommon here in Scandinavia, but treatment is nearly always successful.

And don't read to much on the net about it - all information is certainly not correct, and it easy to get one's own worries exaggerated.

Best wishes for a good recovery!

Old Sh.

[kfarm]

Long time follower but seldom poster. Sorry to hear that anyone has this stuff. I have it, both my grand dad and dad had it. My fathers had it in both hands so bad he could not open his hands or wear gloves or even shake hands. Never knew what it was he just put up with it most of his life and now I have it and have had for the last 10 years or so. Mine is getting worse now and itches all the time and hurts a lot of the time. Got it in the little finger both hands as well as the ring finger on the right. The left is just starting to show but the right is bent at 45*. It'd getting time to have something done even if it's only temporary. I see the Doc next week and since it's after deer season and before I have to hit the fields I'm gonna see if I can get it fixed, wait, I had the dog fixed, I'm gonna have it worked on. Thanks for all the good info. Our family originated in England and was on the Mayflower. Great Great + Grandfather was Charles Carroll of Carlton (signer of the Declaration of Independence).
Carroll

[NorthCountry]

Yes it is bugger isn’t it? It is hereditary and has to do with English or Scandinavian decent or so I have heard. Was discovered by a Doc (Duprytren) in the Penal Colonies in Australia.

I have it in my left hand . My pinky and two other fingers were starting to curl so I went to the Surgeon and he cut into my hand and I guess scrapped the tissue away from the ligaments then sewed my hand up again. Fixed two of the fingers but my pinky is curled pretty good now and I don’t think anything can be done at this stage. I am, 72 and had the hand worked on about 12 years ago. But wait there is more!!!

I am the oldest brother in my family. Both my younger brothers have the fingers curling problem. My middle brother 68 yrs old has had both surgery and the new Serum?? procedure where they use the needle. My youngest brother 58 years old just had his hand worked on with the needle type procedure. He went to New York to get his hand done with the needle. All done in the Dr office and he was in and out in a few hours. Recovery was very rapid. He was playing his Banjo about a week after he had his hand worked on.!!

My middle brother went to some place in Southern California and just had his hand worked on within the last 6 months. The Doctor just worked on the fingers that had not been messed with by surgery. I believe it was his index (Pointing finger). They used the needle procedure and his hand is doing fine. He was having trouble with his index finger (trigger finger) and shooting his revolver. Things are OK now.

Soooooooooo this business with the needle is a new procedure that has only been available here in the United States for a short period of time. That is why my one brother had to go to New York to have it done. I think it was developed in Europe (France?) and has been in use over there for some time. Well that is what I know .I would use the needle procedure if possible. I am sorry I just don’t know what it is called Good Luck.

[kfarm]

WOW! You mean if I have the needle procedure where they cut in to it with a hypodermic needle I can play a Banjo, never played a Banjo before I'll be looking forward to this.
I never knew much about this and have never met any one else with it, but it sure is a bother for me at the stage I'm in and know it's gonna get worse like my fathers was.

[Blaine]

Ok Joe you go first. If by chance this does something to your hand so that you can't shoot I call dibs on your 86.

(quick thinking,K)

[kimwcook]

This stuff sounds kinda scary, genetic, trauma induced.... Hope everything goes okay, Joe. And, hope everyone else with it gets some relief without it getting too invasive.

[86er]

The hand surgeon injected Xylaflex in about 7 or 8 places along the chord in my hand. Wrapped lightly and sent me home. Overnight, at one point is swelled tremendously and at another point is hurt like heck. In the morning it was not so bad. Back to the Doc, he injected my hand 5 times to numb it. Then he bent my hand back and the chord began to snap. I could feel the snap but not the pain or sensation and you could hear it. This hand has been closed for 6 months and now opens straight as an arrow. A little physical therapy and a night cast to stretch the skin for a couple weeks. 6 days afterwards I was building a garden wall and carrying about 130 pounds of cement blocks. The chord snapped again - the pain was intense but lasted only a second. I didn't even drop the blocks. Everything feels good and the hand opens and closes as it should. I am working on the finger that caused this trouble. Broken about 3 times in 3 weeks, it is stubborn to come down all the way but physical therapy is helping that too. I'd recommend this procedure to anyone that has this condition - it is wayyyyy better than the surgical procedure!

[JReed]

Joe that is great. I am glad to hear that the Doc has you on the mend.

[kimwcook]

Glad to hear it worked out for you Joe. I can see that being a very debilitating condition.

[piller]

Joe, that is good news.

[gamekeeper]

Great news Joe, I'm real pleased for you.

[Tycer]

Cool Joe. That's great news. May it stay gone for the rest of your life and the boys too.

[RIHMFIRE]

best wishes...

[iceman]

Glad it worked out. Follow your PT as directed and all should be good.

[Boreman]

Good luck Joe,prayers up !!!!!!!!!!!!!!!!!

[Ysabel Kid]

Really good news Joe. Prayers continue; heal up well my friend!